SUPPORT THE FIGHT TO END EPILEPSY
THANK YOU FOR VISITING OUR DONATE PAGE.
DONATE To Boston Backwards to End Epilepsy
This is Loren, the #BackwardsGuy.
Hello, I’m Loren, and I live in Los Angeles, California!
On April 16, 2018, I’m going to run all 26.2 miles of the Boston Marathon BACKWARDS (yes, literally turned around) and attempt to break the Guinness World Record for the fastest marathon ever run backwards (3 hours, 43 minutes, 39 seconds – about an 8:30 min/mile average pace!).
My brother Brian passed away from epilepsy at the age of seven. I run backwards in Brian’s memory, to better the lives of individuals and families affected by epilepsy, and to END EPILEPSY.
Follow my journey, learn more about Brian, donate and take the 26 Steps Challenge at BostonBackwards.com.
This is Adam, and with your help, he will Eat A Shoe to End Epilepsy!
“I am issuing this challenge: if we raise $250,000 by Thanksgiving (or sooner!), then I will EAT MY SHOE!. The shoe is symbolic of The Walk and is also a metaphor for putting yourself into the shoes of those suffering from epilepsy and its effects. Click the DONATE button to the left and help us End Epilepsy.”
Your donation matters because …
Your gift will support programs that help improve epilepsy care, connect people affected by epilepsy to information and each other, increase awareness about epilepsy, advocate for rights, prevent epilepsy and early death, educate about seizure first aid, and support research.
Epilepsy affects you or someone you love or someone you know.
Epilepsies affect men and women of all ages and all races and ethnic groups, and is far more common than most people realize. The epilepsies affect 160,000 families in our 4-county region, almost 3 million in the USA, and 65 million in the world.
Epilepsies affect the entire family and can change lives, impede development, affect learning, cause accidents, impact livelihoods, cause injury and even result in early death.
$50 Enables us to help a first-time caller newly diagnosed with epilepsy. Donations fund a Helpline staffer, an information packet, referral to a specialist, and invitation to connect with others who understand.
$75 Underwrites an Epilepsy Summit conference day for someone with epilepsy and their caregiver. Donations help ensure vital epilepsy information is disseminated and provide a place to connect with others and meet specialists.
$100 Funds a scholarship for a family at Family Day or an adult and friend at Adult Retreat. Nothing is more powerful than connecting with others who share similar struggles. Combat isolation and leave feeling less alone.
$192 The average research grant is $50,000 per year or $962 per week or $192 per day. Support research – one day, one week, one year. It adds up to more research for cures.
$325 The cost of one epilepsy fellowship is about $85,000 or $325 per day. Training epilepsy specialists is vital in the fight to End Epilepsy.
$100 Helps support an epilepsy training in one school so we can teach seizure first aid and promote safety for students with epilepsy. Your donation funds program promotion, training materials, presentation equipment, staffing, mileage and time on the road so we can reach more schools.
$300 We send delegations to D.C. and Sacramento every year to educate our legislators about the needs of people with epilepsy, to promote the need for more epilepsy research funding, and to advocate on behalf of those living with epilepsy. We also guide and refer individuals in advocating for themselves.
It’s a great way to remember someone and make your gift extra special. Indicate if your gift is in memory or honor of someone so we can inform the correct person of your donation. You may also recognize a special event, such as a birthday or anniversary, by inviting friends to make a gift to Epilepsy Foundation of Greater Los Angeles.
Thanks to our national partnership with Savers thrift stores, you can support national and local services by simply donating gently used clothing to Savers. You will get a tax receipt. The national Epilepsy Foundation receives payment from Savers for your donations and shares a portion with us. To locate your closest Savers Thrift Store or Donation Drop Spot, call 855-336-0212 or visit www.donate4epilepsysouthernca.org.
Does your company have a Matching Gift Program? If yes, please send us their matching gift form with your donation or at year-end, as directed by your company. We will complete and return form to your company. It’s a great way to double your gift! We love to recognize companies that are active in matching employee gifts, so make sure your company is recognized.
Some companies have employee giving or payroll deduction programs for charity. Please encourage your company to add the Epilepsy Foundation of Greater Los Angeles to their list of charities and designate us in your own giving. We recognize companies with employee giving programs that support the fight to End Epilepsy, so help get your company added.
Our annual special events promote awareness and provide vital support for our mission. Support a special event by becoming a corporate sponsor, selling tickets, inviting friends, donating to a charity auction, and more. Sponsor a direct service/program.
Please consider donating your old car, boat or RV to support this cause. Proceeds benefit both the national and your local Epilepsy Foundation. Please call the Epilepsy Foundation at 1.877.332.2777 and indicate you want proceeds from your donated vehicle to help the Epilepsy Foundation of Greater Los Angeles. Please also let us know so we can track it and keep you informed of services and programs that your donation helps to support.
We welcome in-kind donations to the programs and services we operate year-round. Our wish list includes but is not limited to:
– food and beverages for our family programs
– children’s gifts and prizes for our family programs
– donate printing of T-shirts or printed materials
– gifts and prizes for our raffles and silent auctions
– children’s safety helmets
– electronics and office supplies
– picnic supplies and other paper goods
When it comes to supporting epilepsy research, the Epilepsy Foundation of Greater Los Angeles is proud to be leading all the other Epilepsy Foundation Affiliates, nationwide, in donating the most money to epilepsy research. A portion of our annual budget is donated to research.
For more information, visit http://endepilepsylegacy.org/ or contact us at Legacy@EndEpilepsy.org
Make your core values known by joining the Epilepsy Foundation of Greater Los Angeles/END EPILEPSY and making a planned gift to support the fight to END EPILEPSY. Members of our END EPILEPSY LEGACY CIRCLE are generous and forward thinking donors who will support our long-term success and be long remembered.
END EPILEPSY LEGACY CIRCLE members are honored with
⇒Recognition on our website
⇒Tributes in our annual newsletter
⇒Invite to our annual Epilepsy Summit Luncheon or Reception and our Care & Cure Benefit
For more information:
Where do you get your money?
The Epilepsy Foundation of Greater Los Angeles relies primarily on the generosity of individual donors who give in response to special appeals or events. In addition, we receive funds in response to grant requests to corporations and foundations.
How are decisions made about the budget?
The Board of Trustees reviews and approves the budget each year and approves the salary of the Executive Director.
Do you get any money from the state or federal government?
We do not receive federal or state funds to deliver our programs and services. The Regional Centers get most of the available state funding to help individuals with epilepsy, under the Lanterman Act which established Regional Centers to serve individuals with developmental disabilities, cerebral palsy, and epilepsy. However, usually only those with severe forms of epilepsy and/or with dual diagnosis are accepted as Regional Center clients.
Many individuals with a sole diagnosis of epilepsy fall through the cracks and do not get services from the Regional Center — and look to us for help.
Where does my money go? How much of my money goes to programs and services?
Currently 87% of donations go to support programs and services. In addition, our regional Epilepsy Foundation is fortunate to benefit from the Garnier Trust Fund which was established many years ago by the generosity of Mrs. Audette Garnier. The interest our Foundation gets from this trust fund each year is almost 10% percent of our budget, so it covers a good portion of our administrative costs and some of our fundraising costs. Thus, each year, over 90% of your donation goes to support programs and services offered by the Epilepsy Foundation of Greater Los Angeles.
The Epilepsy Foundation of Greater Los Angeles does not share or sell our donor list with anyone. The donor list is kept confidential. We ask each donor whether they want to be recognized or not on our lists, but in any case we do not allow the contact information to be made public.
What is your relationship with the national Epilepsy Foundation in Landover, Maryland?
The Epilepsy Foundation of Greater Los Angeles is an independent 501(c)3 nonprofit organization which chooses to affiliate with the national Epilepsy Foundation in Maryland. Working with the national office and the affiliate network, across the country, provides a stronger, unified voice on behalf of people with epilepsy. As an affiliate, we are on the front lines of providing programs and services to families affected by epilepsy in Los Angeles and surrounding counties of Orange, San Bernardino and Ventura. As a founding member of Epilepsy California, we also spearhead statewide advocacy that benefits families with epilepsy throughout California.
Do you pay dues to the national Epilepsy Foundation in Landover, Maryland?
We have an option to donate to research or pay dues. We choose to support research instead of paying dues each year. Thus, a portion of what is raised each year goes to research.
May I establish a special fund in my name or in honor of someone else for a specific program?
The Board of Trustees welcomes designated gifts for activities that are already part of our programs and services and that help fulfill our mission. If you wish to support an existing program through a restricted gift which requires special reporting, please talk to the Executive Director so that your generous wishes and expectations can be discussed and considered more carefully in advance.
If you wish to give a restricted gift for a new program, please talk to the Executive Director. Together with you, the Executive Director and a trustee will discuss the proposed program and come to an understanding of whether and how the Foundation can meaningfully fulfill your wishes to establish a new program.
How can I get more involved with the Foundation?
In addition to your faithful giving, there are other ways that you can get more involved with the Foundation. We invite you to be part of our special fundraising events as a committee member, a volunteer for the day, or as a participant. We also invite you to attend our camps and conferences and meet people served by your gift. Please consider joining our END EPILEPSY LEGACY SOCIETY. We would like to meet with you to find out more about your interests and how you would like to be involved with us.
What if I need another copy of the receipt for tax purposes or if I have a question and need to speak to someone?
We can provide you with another copy of the receipt for your donation for tax purposes. For such requests and any other questions, please contact Michelle at Email or 310.670.2870.
Your story is a gift. Please share it. Your story matters. Share it effectively, and you will find out how much it matters. Your story will inspire others to join the cause. Your story will inspire others to give. That will mean more people and funding for the fight to END EPILEPSY. Link here to share your story.