PROGRESS
IN OUR FIGHT
TO END
EPILEPSY

The Challenge 

• No pediatric neurologist at LA County Medical Center
• Not enough pediatric neurologists or epilepsy specialists
• No dietary therapy programs in region

Our Response and Impact 

• Established our Care+Cure Initiatives
• Supported launch of only pediatric neurologist at LAC+USC Medical Center
• Supported training of 27 pediatric neurologists or epileptologists
• Launched three dietary therapy programs at UCLA, LAC+USC and CHLA in collaboration with The Charlie Foundation for Ketogenic Therapies
• Helped fuel and inspire the growth of pediatric epilepsy programs in our region
• Expand our geographic reach: Miami, FL and Orange County, CA will be our first new Care+Cure regions

The Challenge

• Individuals and families affected by epilepsy feel isolated and alone

Our Response and Impact

• Host a Helpline for 57 years
• Hosted a Family Camp for >20 years
• Hosted an annual Teen Retreat for 10 years
• Offer support/therapy groups, including Studio E: Art Therapy
• Host an annual adult retreat or social outing
• Host annual Family Day or Picnic for past 10 years

Learn more about our Camp Program

The Challenge

• No voice for people with epilepsy in California

Our Response and Impact

• Partnered with Epilepsy Foundations in CA to establish Epilepsy California for statewide advocacy
• Supported passage of bill so students with epilepsy can have access to seizure rescue medications in school, and we continue to support implementation with educational material
• Host Epilepsy Awareness Day in Sacramento and educate legislators about epilepsy
• Send delegation to D.C. for Epilepsy Public Policy Institute / Teens Speak Up! to advocate for more funding for epilepsy research and programs
• Ongoing legislative advocacy to protect rights and lives

The Challenge

• No affiliate support or promotion of research

Our Response and Impact

• We are the largest affiliate sponsor of epilepsy research
• Active Enews and social media promote and update on research
• Provide research updates at Epilepsy Summit

The Challenge

• Little epilepsy awareness
• Lots of misinformation about epilepsy

Our Response and Impact

• Conduct epilepsy education and awareness as part of everything we do
• Created Big Brain Exhibit with Love Your Brain message for schools
• Organized an Epilepsy Summit for 10 years, and re-launched it in 2015
• Conduct Seizure Recognition+First Aid Training in schools/community
• Offer epilepsy education to newly diagnosed families

Request for a presentation for your child’s school or workplace