SUPPORT
THE FIGHT
TO END
EPILEPSY IN
VENTURA
COUNTY

The Need in Ventura County and Beyond

You are probably here because epilepsy affects you or someone you love or someone you know.

There is a great need. The epilepsies are more common than most people realize and you surely know someone with epilepsy — even if you don’t know it yet.

Men and women of all ages and races and ethnic groups are diagnosed with epilepsy.

The epilepsies affect nearly 10,000 families in the Ventura County region, almost 3 million in the USA, and 65 million in the world.

While usually only one person in the family has epilepsy, it really affects the entire family.

Epilepsy can change lives, result in loss of friends and jobs, impede development, affect learning, cause accidents, impact livelihoods, cause injury and even result in early death.

About Us

The Epilepsy Foundation of Greater Los Angeles is leading the fight to END EPILEPSY and overcome challenges created by seizures by focusing on Care, Advocacy, Research and Education. Through these areas of focus, we offer a range of services and programs to help, support, advocate for, and empower those who are affected by epilepsy and their caregivers. We also support research to accelerate cures for the epilepsies, support the training and work of new pediatric epilepsy specialists, and also seek to educate the general public to better understand epilepsy/seizure disorders, and fight to END EPILEPSY.

Who We Serve

We serve individuals and families affected by epilepsy/seizure disorders. Our primary areas of service include the Counties of Los Angeles (10.14 million), Orange (3.1 million), San Bernardino (2.1 million) and Ventura (0.85 million). The estimated combined population of our territory is over 16 million. At least 1% of the population has epilepsy/seizure disorders. Thus, in the four Counties we serve, almost 160,000 people have epilepsy. However, many more are significantly impacted by epilepsy in their daily lives when you include family members, caregivers, and friends in the total.

What We Do

We are here for you, as we have been for more than 61 years. As your local Epilepsy Foundation chapter, the Epilepsy Foundation of Greater Los Angeles is the only non-profit, 501(c)(3) charitable organization dedicated solely to serving people affected by epilepsy in this entire region. Our tax ID is 52-0856660.

Our Activities in Ventura County

The Epilepsy Foundation of Greater Los Angeles is proud of our past accomplishments that serve and impact the epilepsy community in Ventura County.  Here are a few of our activities and activities we have funded and offered:

  1.  Held two Epilepsy Workshops in partner with Tri-Counties Regional Center.
  2.  Conduct epilepsy trainings for school personnel, participate in health fairs and held our Big Brain Exhibit.
  3.  Lead statewide advocacy, including help getting SB161 signed into law — a law that benefits students with epilepsy throughout California who have a prescription for seizure rescue medication incase they have a seizure at school.
  4.  Organize speakers on epilepsy for the annual meeting of the California School Nurses Organization.
  5.  Conduct trainings and provide materials to Ventura County school nurses through our partnership with the California School Nurses Organization.
  6.  Our Helpline reaches throughout most of Southern California.
  7.  Our biennial Summit conference and our camp are offered to families throughout our region.
  8.  Monthly support group for parents of children with epilepsy
  9.  Three upcoming Epilepsy Workshop+Socials in October and November 2019

Upcoming + Ongoing Events

EPILEPSY PARENTS SUPPORT GROUP 

Who?
Parents of children with epilepsy

What?
A FREE program for parents to gain support and share information in an understanding setting. 
VIew program flyer

When?
Second Tuesday of every month
6:00 pm – 8:00 pm
2019: January 8, February 12, March 26*, April 9, May 14, June 11, July 9, August 13, September 10, October 8, November 12, December 10

Where?
Valley Lupin Room
Goebel Adult Community Center
1385 E Janss Road
Thousand Oaks, CA 91362

How to Register
Advanced registration is recommended.
REGISTER ONLINE HERE
Call 800.564.0445 / 310.670.2870
Email Help@EndEpilepsy.org

 

 

 

 

 

Make a donation

THANK YOU FOR VISITING OUR DONATE PAGE.

Click here to make a donation online supporting Initiatives in Ventura County.

DONATE ONLINE HERE (or copy and paste this address into your browser donate.epilepsy.com/givenowgla)!

If you would like to make a donation by phone or have any questions, please contact Hannah-Kalea Enriquez at 310.670.2870 or HEnriquez@EndEpilepsy.org.

Creative ways to give. There are other ways to donate besides by check or credit card.

Other Ways to Give
1. Give in Memory and Honor of Another

It’s a great way to remember someone and make your gift extra special. Indicate if your gift is in memory or honor of someone so we can inform the correct person of your donation. You may also recognize a special event, such as a birthday or anniversary, by inviting friends to make a gift to Epilepsy Foundation of Greater Los Angeles.

2. Donate Clothing+Small Household Items to Savers

Thanks to our national partnership with Savers thrift stores, you can support national and local services by simply donating gently used clothing and household items you no longer need to Savers. You will get a tax receipt. The national Epilepsy Foundation receives payment from Savers for your donations and shares a portion with us. To schedule a pickup, call 855-336-0212 or visit www.donate4epilepsysouthernca.org. The nearest Savers store in Orange County is Savers Fountain Valley.

3. Double Gift with a Matching Gift Program

Does your company have a Matching Gift Program? If yes, please send us their matching gift form with your donation or at year-end, as directed by your company. We will complete and return form to your company. It’s a great way to double your gift! We love to recognize companies that are active in matching employee gifts, so make sure your company is recognized.

4. Multiply Gift with Employee Giving Program

Some companies have employee giving or payroll deduction programs for charity. Please encourage your company to add the Epilepsy Foundation of Greater Los Angeles to their list of charities and designate us in your own giving. We recognize companies with employee giving programs that support the fight to End Epilepsy, so help get your company added.

5. Sponsor Programs or Special Events

Our annual special events promote awareness and provide vital support for our mission. Support a special event by becoming a corporate sponsor, selling tickets, inviting friends, donating to a charity auction, and more. Sponsor a direct service/program.

6. Be an Athlete in Action.

We encourage all athletes of all levels to participate and raise funds for the fight. Please consider joining our OC Athletes to End Epilepsy team. Visit www.OCAthletestoEndEpilepsy.org for more information.

7. Donate a Used Vehicle

Please consider donating your old car, boat or RV to support this cause. Proceeds benefit both the national and your local Epilepsy Foundation. Please call the Epilepsy Foundation at 1.877.332.2777 and indicate you want proceeds from your donated vehicle to help the Epilepsy Foundation of Greater Los Angeles. Please also let us know so we can track it and keep you informed of programs that your donation helps to support.

8. Donate Products for our Programs

We welcome in-kind donations to the programs and services we operate year-round. Our wish list includes but is not limited to:
– food and beverages for our family programs
– children’s gifts and prizes for our family programs
– donate printing of T-shirts or printed materials
– gifts and prizes for our raffles and silent auctions
– children’s safety helmets
– electronics and office supplies
– picnic supplies and other paper goods

9. Donate for Research

When it comes to supporting epilepsy research, the Epilepsy Foundation of Greater Los Angeles is proud to be leading all the other Epilepsy Foundation Affiliates, nationwide, in donating the most money to epilepsy research. A portion of our annual budget is donated to research.

10. Donate Stock or Property or Remember “End Epilepsy” in your Will

For more information, contact us at Legacy@EndEpilepsy.org

People give
because

someone
asked.

 

Share your
story.

Ask.

 

 

Find out for yourself how much your story matters.

Your Story is a Gift

Your story is a gift. Please share it. Your story matters. Share it effectively, and you will find out how much it matters. Your story will inspire others to join the cause. Your story will inspire others to give. That will mean more people and funding for the fight to END EPILEPSY.

Link here to share your story.